Technology with a Human Touch

               When I found out she had sickle cell I cried for her I didn't want that for my daughter I never heard anything good about sickle cell.  You don't want your child to go through any kind of pain     Children's Medical Center of Dallas
is celebrating our one hundredth year. Our
mission is to make life better for children we care for children that are scattered
throughout the state of Texas who have chronic illnesses we saw a gap we saw our children being cared
for, and other areas without complete information. We wanted,
with our personal health record project, to be able to provide a solution to have their clinical information
available to them regardless of their location.

   The Office of the National Coordinator
for many years has really been focused on enabling health information exchange
across the country and the technology is at a point now where really we have a moral obligation to harness it and to make the lives
better for patients sickle cell disease is a disease that
impacts many organ systems throughout the body.
It is a complicated disease. The benefit of having an accurate
reflection of what's going on in terms of
active problems in terms of medications in terms of recent health care encounters that're
really invaluable when you're gonna be encountering people that don't
necessarily know your story from birth in the way that we know their stories
from birth. Doctors up here, they're good but they do not understand sickle-cell.
With the app now it's so much better.  I have documents and it's not hearsay.

And when I show them they know that this is real and this is what's going on in her records, it's right in front of them. The types of patients that are in this pilot program,  they have chronic illness and it's
something that they're going to have to deal with from birth to the rest of their lives. Trying to
manage that, trying to remember everything you've been on every medication every
treatment any surgery et cetera, is really difficult to manage. You know you get stacks of paper from one doctor, then you get another stack from this doctor.

How he's
going to keep that all together? What we've done is kind of given them
one source, one location to keep that information
all there, so immunizations medications even insurance
information and it's on something that's already
kinda integrated itself into our lives when we can give them those tools and a device so they can look at their
children's medical records they feel empowered they just keep
looking at their kids and smiling because they know there's one more thing they can do for their kid to
to make their life just a little bit better this pilot at Children's Medical Center fundamentally changes the role of the
patient we believe this gives them the
opportunity to own their data to control it to learn
more about how they're doing and to
coordinate their care across all these providers I think everybody understands the value
here and they're excited about the  path ahead I really thank Children's with the program because it really does help 0.